Hello everyone, Karin Alvtegen here.
The release of the new book draws near, Invisibly Sick – while life passes, which Karin Thunberg wrote about me and my journey with ME.
As a successful writer, I was very restrictive about talking about my private life or letting journalists step over the threshold of my home. My husband Micke Nord Andersson (musician and music producer) has always felt the same, our integrity has always been most important.
With this book we have done the opposite. Karin Thunberg followed us in the fall, slept over sometimes, had breakfast and dinner with us. Saw with her own eyes what few outsiders really understand – how ME totally changes life and how limiting the disease is, how little is needed to overtake the energy account and trigger PEM (Post-Exertional Malaise), exertion-triggered deterioration. How much work it means for my husband and how much my illness also limits his life.
And the longer she followed us and understood, the more she shared our anger over how ME sufferers and relatives are being treated by the health care, insurance fund and all BPS advocates. All idiotic studies that are done on the wrong patient group which means that we continue to be sent in CBT and mistreated with GET (Gradually Increased Training).
The book also contains interviews with my husband, my parents, my adult sons and my friend the author Åsa Larsson, who have always continued to be by my side while I piece by piece mounted my life. (…)
Karin Thunberg has written a very good and insightful book.
I have been involved for one reason: No person in power, politician or healthcare officer should ever be able to say:
– I did not know.